Activity and Wellness For A Healthy Tomorrow

Dear Hemophilia Community,

At Bayer HealthCare Pharmaceuticals Inc., we are committed to offering robust programs that enrich the lives of those living with hemophilia A. We hope that you can be secure in knowing that Bayer HealthCare Pharmaceuticals will continue offering solutions to address real life needs of families in the hemophilia A community. One of the real issues we will work to address in 2009 is overall health and fitness in the hemophilia A community.

According to the Centers for Disease Control and Prevention, obesity is a health concern for adults, youth and children in the United States. Specifically in the hemophilia community, children with hemophilia are almost twice as likely to be overweight than their peers without hemophilia.¹

In partnership with the National Hemophilia Foundation (NHF), Bayer HealthCare Pharmaceuticals is working to combat childhood obesity in the hemophilia community by offering programming focused on active and healthy lifestyles through the 2009 Team Hemophilia mobile tour. The tour will make stops at summer camps across the country to provide relevant and important youth programming aimed at increasing activity and encouraging proper eating habits. Our goal is to leverage the excitement and mobility of Team Hemophilia to teach children the importance of healthy living and to encourage them to get active!

We are leading another exciting initiative in 2009 to encourage fitness and active lifestyles through LivingWithHemophilia.com. Living Fit! A Joint Effort is developed in cooperation with the hemophilia community, professional physical therapists and physical educators to offer physical therapist-recommended tips for strength and resistance training for young people. It will feature interactive fitness guides as well as personal success stories in an effort to provide a user-friendly fitness experience that may be easy to follow in your own home.

Another exciting program to look for in 2009 is LINK. Facilitated by local Bayer HealthCare Hematology Account Executives, LINK programs are interactive and community-based forums for patients and caregivers to provide feedback and gain Learning, INsights, and Knowledge on real life issues. The LINK program also features a video tutorial on fitness and joint health.

Thank you for being a valuable member of the hemophilia community. We welcome continued feedback and input from you as we grow and develop 2009 programs. Please visit www.KogenateFS.com to receive email alerts with new information and program updates throughout the year.

We resolve to provide you with important health and fitness information in 2009, and we encourage each of you to participate with us in one or more of these programs to live healthy and fulfilling lives.

Sincerely,


Paul Bedard
Vice President, General Manager Hematology
Bayer HealthCare Pharmaceuticals

1 2006, Volume 1 edition of Bloodline, Jennifer M. Phillips, MS, RD, LD, Clinical Dietitian, Division of Hematology/Oncology, Division of Nutrition Therapy at Cincinnati Children's Hospital Medical Center.

Calendar Corner:
2009 Meetings & Key Dates

March
• 13-14 – Hemophilia Federation of America (HFA), Indianapolis

April
• 15 – Living With Hemophilia Train-the-Trainer Session, Chicago, IL

• 16-18 – Hemophilia & Thrombosis Research Society (HTRS), Chicago, IL

• 17 – World Hemophilia Day

• 22-25 – American Society of Pediatric Hematology/Oncology
(ASPHO) Annual Meeting, San Diego, CA

July
• 11-16 –The International Society on Thrombosis and
Haemostasis (ISTH) Annual Meeting, Boston, MA

October
• 29-31 – NHF Annual Meeting, San Francisco

• 31 – NHF/MASAC Meeting, San Francisco

December
• 5-8 – American Society of Hematology (ASH) Annual Meeting, New Orleans

What's New on
LivingWithHemophilia.com

Visited LivingWithHemophilia.com lately?

Check out what's new on LivingWithHemophilia.com, an online resource for patients and caregivers. The Web site offers real-world advice and tools from essential tips on handling an insurance lapse, to helpful suggestions for finding a hemophilia summer camp near you. The continually updated content also features columns and insights from respected members of the hemophilia community and provides visitors with an opportunity to "Ask An Expert" about topics relevant to you! Be sure to visit the new section of the site devoted to the new Bayer HealthCare Pharmaceuticals program: Living Fit! A Joint Effort.

Living Fit!

In cooperation with the hemophilia community, physical therapists and physical educators, Bayer HealthCare Pharmaceuticals brings you Living Fit! A Joint Effort. This unique program offers physical therapist recommended tips for strength and resistance training for young people. It also features stories and video from Corey Pierce, a college senior living with hemophilia A, who serves as a Living Fit! Youth Ambassador. Find these interactive program features on LivingWithHemophilia.com.

Get On the Right Track with HFA

Start the year on the right track by signing up for the 2009 Annual Educational Symposium with the Hemophilia Federation of America (HFA)!

Bayer HealthCare Pharmaceuticals is proud to be a sponsor of the Symposium which will be held March 13-14 in Indianapolis, Ind., and features educational sessions focused on advocacy and community. Programs are offered for all ages. Enjoy fun-filled workshops, team building activities, advocacy awareness and hands-on projects. Plus, you'll gain the invaluable opportunity of networking with others living with hemophilia to learn how they are making their community a better place.

Register online at http://hemophiliafed.net/symposium09/ or print and mail your registration form to HFA. For more information, call the Hemophilia Federation of America at 1-800-230-9797.

Team Hemophilia: Coming Soon To A Summer Camp Near You

The 2009 Team Hemophilia program is warming up for a FIT and ACTIVE season at hemophilia summer camps across the country!

With leadership from NHF and sponsorship by Bayer HealthCare Pharmaceuticals Team Hemophilia 2009 is partnering with hemophilia summer camps to provide children and teens with interactive education focused on fit and active lifestyles. The exciting, hands-on Team Hemophilia mobile tour is sure to encourage youth to get active.

The 2009 program was developed with guidance from the National Hemophilia Foundation's physical therapist working group and is facilitated by members of NHF's National Youth Leadership Institute (NYLI).

To find out if Team Hemophilia is visiting a summer camp in your area, please contact your local hemophilia camp director.

LINK Provides Insight on Real Patient Issues

LINK can help to provide you with Learning, INsights, and Knowledge on the real life issues of patients and caregivers in the hemophilia community. Facilitated by your local Bayer HealthCare Hematology Account Executive, the program's open-forum format allows participants to provide feedback on vital treatment and lifestyle issues. These interactive presentations begin with informational slideshows combined with video demonstrations featuring hemophilia experts. Each program also includes discussion on the following topics:

• Exciting new product updates
• Living Beyond Hemophilia, a community for young people and
  mentors
• EZ-Log Web Diary tracking system

For more information on LINK, visit www.KogenateFS.com or contact your local Bayer HealthCare Hematology Account Executive.

Answers to Questions about Self- Infusion

By Susan Gamerman, RN

I suggest families look for upcoming opportunities. Planning your calendar, you might see school trips or travel plans that will take your child away from home. The months leading up to these events can provide a good time to make this important transition towards independence. Self-infusion can be a life-changing and liberating event that raises a child's self-confidence and promotes autonomy.

Questions I sometimes get asked by parents contemplating the transition include:

• How do I know if my child is ready?
• Is it okay to have my child practice on me?
• How can I get my child more interested in self-infusion as an option?
• My child appears ready and wants to, but I'm filled with all these worries. What can I do?

I'm happy to have this opportunity to answer your specific questions about self-infusion. Just drop me a note using the form below and I'll post a reply on this page so the community can learn more about this important topic.

Susan Gamerman, MS, RN, PNP-BC works in the Hemophilia & Thrombophilia Program at Children's Memorial Hospital in Chicago. Her nursing career began in the intensive care unit. She soon discovered, however, the rewards of working closely with families and patients with hemophilia and other bleeding disorders. One reason she enjoys the work is because she can follow the children as they grow up. Susan holds a Masters Degree as a pediatric nurse practitioner from DePaul University. She lives in Chicago.

Submit your question on self-infusion to Susan at LivingWithHemophilia.com.

Click and Connect with EZ-Log Web Diary

Take Control of Hemophilia A Therapy

EZ-LOG Web Diary is the interactive solution to help you stay on track with your treatment. EZ-LOG Web Diary is more than just a diary. It is an effective way to get connected and stay connected to your healthcare providers for treatment monitoring between visits.

EZ-LOG Web Diary is a safe, secure, password-protected information management system that gives you:

• Storage and tracking of your infusion history that you can't lose or misplace
• Four helpful treatment reports to track your therapy and ongoing hemophilia A management
• E-mail alerts that notify your factor provider of low inventory levels
• 1-to-1 privacy-secured messaging so that you can communicate with hemophilia treatment centers and home healthcare organizations
• Optional text messaging to your mobile phone that keeps you up to date about important information regarding your therapy
• Tracking to identify lot number of product

EZ-LOG Web Diary is a free service available to all patients regardless of the factor product they use.

Enroll to begin using EZ-LOG Web Diary right away!

Simply ask your healthcare provider for an enrollment form or go to www.KogenateFS.com and follow the links for EZ-LOG Web Diary to obtain enrollment forms from the support team. EZ-LOG Web Diary support is available Monday through Friday between 8:00 AM and 8:00 PM EST/EDT via phone at 800-732-4188, ext 27, and by e-mail anytime at support@aheh.com.

IMPORTANT

EZ-LOG is not designed to replace your regular methods of communicating with your healthcare providers. It is especially important that you continue to contact your healthcare providers by phone or in person for any urgent medical events.

Although Bayer HealthCare Pharmaceuticals makes every reasonable effort to protect your data from interception, misuse, or alteration by third parties, you should be aware that there is always some risk involved in transmitting information over the Internet and that thieves could find a way to thwart our security systems.

Please consult with your healthcare provider to determine if Kogenate® FS is appropriate for you.